Is the furnace not working when it is 20 degrees outside. My house is decently insulated if the wind isn't blowing and its not cold. Fortunately it is not windy this evening. Ray and the kids are all snoring and I am running the oven, the dryer and the space heater... because I don't want the house too cold.
Fortunately Ray bought a propane wall heater on an auction yesterday and hopefully my brother can install it Tuesday. We can't tomorrow because we have to go to the Genetic appointment for the Marfans.
Now, with Row it has always been torn between diagnoses, yet somehow having the rubber stamp of approval on "what he has" has always been important. I have taught Special Education for five years, I know that he is Aspergers (I also have taken the adult Aspergers rating and I am pretty sure I'm Aspergers -or gifted, but you can call me gifted). Row is probably more like his parents than his little extroverted siblings. He is certainly more like me. He looks just like his Dad, yet he looks just like his Sharp cousins. Row has always been able to jump rope his arms, he's hyper mobile. Row is likely to have Marfans. He's tall, narrow jaw, scoliosis, long arms, long fingers. I have all the same physical features too. So, we know that he is surely Marfans. I am not too worried about it. The diagnosis will effect the treatment for his slightly enlarged aortic root. Two years ago when we went to the cardiologist I about had a panic attack because the tech doing the echo-cardiogram took way too much time on it. The longer she went back over and kept measuring his heart the closer I came to flipping out. I refuse to take him to the cardiologist alone. I tend to panic, quickly especially over something with my kids. I do not do well under pressure. But, I also don't sit around and worry. Fortunately he has always been low energy and his main exercise is video games. He is already not to play contact sports. He is always tired.
Its funny when I was a kid I was always tired. My Mom has always beat me in energy... she still has more energy than I do, yes I run, but that is forced. I just can't "go" all the time. Its not depression, its just a constant feeling of fatigue, its not "chronic fatigue" I don't hurt, but I've always been able to sleep 10-12 hours a night (or a morning). But, as I read about it, it is systemic and chronic exhaustion for no reason is a symptom, its a relief to know that.
But, with the diagnosis then we can keep an eye on Row's heart. His doctor suggested beta blockers last year, which is good, it lowers blood pressure and is a treatment for anxiety. His biggest problem in school is anxiety. So, it will essentially kill two birds with one stone. I'm sure he'll be just fine with not going to school tomorrow.
So I will continue with my night-owl dishes and laundry, wanted to write about this..beforehand.
I have discovered that Doctors are a hell of a lot more respectful if I wear my Stanford jacket. They're scared to ask me if I actually went to school there. I highly suggest Ivy League gear for dealing with physicians. Standard of care increases.
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